Patient and Family Centered Care

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Summary

Definition

  • Patient and family-centered care ensures the health and well-being of children and their families though a respectful family-professional partnership that includes shared decision making. It honors the strengths, cultures, traditions, and expertise that everyone brings to this relationship.
  • Historically, in the field of MCH, the concept of patient and family-centered care was developed within the community of parents, advocates and health professionals concerned for children with special health care needs (CSHCN).

Objectives

Participants will:

  1. Be able to define patient and family centered care and the principles that guide this definition.
  2. Understand how patients and families can be participants in their own and their loved ones healthcare.
  3. Have identified areas where patients and families can be active in various healthcare settings: an outpatient clinic; the inpatient unit of a hospital; in a community center.
  4. Know how patients and families advocate at the community, state and national levels.
  5. Have an indepth understanding of how to help support patients and families in the institutional setting.

Core Seminar

  • Introduction to Patient and Family Centered Care: Angela Miney, Family Partner UF PPC
  • Living with a Chronic Illness: The Patient and Family Perspective
  • Participation in activities
  • FCC game
  • With other PPC trainees explore Patient and Family practices in other institutions
  • CEPR Manual
  • Family Involvement Resources

Websites

Self-Directed Learning

  • Explore the IFCC website. What do you notice?
  • What are some of the challenges to implementing Family Centered Care?
  • How can FCC help reduce health disparities?

Community Activity

  • How does a family-centered approach affect community activities?

Participation in Faculty Activities

  • Participation in clinic activities—do you observe a family centered approach?
  • How might the clinic/faculty become more family centered?
  • Office Setting: Observe family partner interactions with interdisciplinary team

Leadership Journal & Portfolio

  • Think about a time that you or a family member had a health problem: were you treated in a family centered way? What would have increased this?
  • How does family centered care relate to quality and safety initiatives?

Clinical Preparation

  • Clinic Setting: Shadow family partner in clinic setting to observe interaction with patients and families
  • Inpatient setting: Attend meetings on the inpatient unit to observe patient and family centered practices.