Spring 2008
Just for Teens If your age has moved into the double digits, this bit is for you! You have entered into a difficult time in your life. You are old enough to be perfectly able to be in charge of your CF care and maybe to really hate…
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Just for Teens If your age has moved into the double digits, this bit is for you! You have entered into a difficult time in your life. You are old enough to be perfectly able to be in charge of your CF care and maybe to really hate…
Family-Centered…Who Cares? Family centered care is a phrase being heard more and more in healthcare. It means that medical professionals have come to realize that caregivers and families have a major impact on a patient’s continued health and well being, and they cannot be ignored.
When to Call-Part II: Digestive System Problems In the last newsletter, you learned about lung changes that should cause a phone call to your CF Care Team. Now, let’s talk about changes in the digestive system that should also prompt a phone call. Some of these will sound familiar because…
About Hypertonic Saline In 2004 we learned the results of an Australian study funded by the CF Foundation to find out if inhaling a mist of “hypertonic” saline would help people with CF. Since CF lungs have too little salt and water, the researchers thought breathing in a salt water…
Let’s Talk About Tune-Ups! Some of you are well acquainted with the hospitalizations we call “tune-ups,” while others of you have not yet had this experience. Here are some things to keep in mind about why you come in for tune-ups and how to handle the experience.