Posted in

CF Connection

Winter 2014/2015

An IEP or 504 Plan—Does My Child Need One? If your child is in school, make sure that he or she has a plan in place for any needed accommodations. These accommodations may include getting treatments at school (for example, enzymes, albuterol, insulin or nutritional supplements, or even g-tube feeds…

Fall 2013

Patient Protection and Affordable Care Act The Patient Protection and Affordable Care Act (PPACA) will make some changes to health insurance that can benefit you and your child(ren).

Summer 2011

Tips for a Fun and Healthy Summer Well summer is here and with that, a change in routine. Here are some ways to make the most of vacation without letting care…and health, slide.

Summer 2010

A New Inhaled Antibiotic This spring, CF got a new tool in the toolbox with the FDA approval of Cayston®, which is the antibiotic aztreonam for inhalation. This is exciting news because the respiratory bug it is most suited to treat is pseudomonas. So when tobramycin is no longer working…

Spring 2009

Get Ready for Tax Time! Did you know that you may be able to use the cost of medical expenses as a tax deduction? You can do this if the total medical costs paid by your family in a given year exceed 7.5% of your gross adjusted income in that…

Winter 2007/2008

Condiments Count! Looking for a way to increase calories without trying to fit in another snack? Try adding high-calorie condiments to meals and snacks you are already eating! Here are some ideas:…

Spring 2008

Just for Teens If your age has moved into the double digits, this bit is for you! You have entered into a difficult time in your life. You are old enough to be perfectly able to be in charge of your CF care and maybe to really hate…

Fall 2007

Family-Centered…Who Cares? Family centered care is a phrase being heard more and more in healthcare. It means that medical professionals have come to realize that caregivers and families have a major impact on a patient’s continued health and well being, and they cannot be ignored.

Summer 2007

When to Call-Part II: Digestive System Problems In the last newsletter, you learned about lung changes that should cause a phone call to your CF Care Team. Now, let’s talk about changes in the digestive system that should also prompt a phone call. Some of these will sound familiar because…

Winter/Spring 2006-2007

About Hypertonic Saline In 2004 we learned the results of an Australian study funded by the CF Foundation to find out if inhaling a mist of “hypertonic” saline would help people with CF. Since CF lungs have too little salt and water, the researchers thought breathing in a salt water…