- Patient and family-centered care ensures the health and well-being of children and their families through a respectful family-professional partnership that includes shared decision making. It honors the strengths, cultures, traditions, and expertise that everyone brings to this relationship.
- Historically, in the field of MCH, the concept of patient and family-centered care was developed within the community of parents, advocates, and health professionals concerned for children with special health care needs (CSHCN).
- Be able to define patient and family-centered care and the principles that guide this definition.
- Understand how patients and families can be participants in their own and their loved one’s healthcare.
- Have identified areas where patients and families can be active in various healthcare settings: an outpatient clinic; the inpatient unit of a hospital; in a community center.
- Know how patients and families advocate at the community, state, and national levels.
- Have an in-depth understanding of how to help support patients and families in the institutional setting.
- Introduction to Patient and Family-Centered Care: Angela Miney, Family Partner UF PPC
- Living with a Chronic Illness: The Patient and Family Perspective
- Participation in activities
- FCC game
- With other PPC trainees explore Patient and Family practices in other institutions
- CEPR Manual
- Family Involvement Resources
- Family Voices
- Institute for Family-Centered Care
- WHO Patient Safety
- Compendium of FCC Activities
- Medical Home- AAP
- LEND Family Competencies
- Promising Practices in Family Mentorship
- Explore the IFCC website. What do you notice?
- What are some of the challenges in implementing Family-Centered Care?
- How can FCC help reduce health disparities?
- How does a family-centered approach affect community activities?
Participation in Faculty Activities
- Participation in clinic activities—do you observe a family-centered approach?
- How might the clinic/faculty become more family-centered?
- Office Setting: Observe family partner interactions with an interdisciplinary team
Leadership Journal & Portfolio
- Think about a time that you or a family member had a health problem: were you treated in a family-centered way? What would have increased this?
- How does family-centered care relate to quality and safety initiatives?
- Clinic Setting: Shadow family partner in clinic setting to observe interaction with patients and families
- Inpatient setting: Attend meetings on the inpatient unit to observe patient and family centered practices.