Resources for Professionals

Assessment for Patients with Neuromuscular Disease

  • Spirometry
  • Maximal inspiratory and expiratory pressure
  • Peak cough flow
  • Whole body plethysmography
  • Polysomnography
  • Venous blood gas
  • Serum bicarbonate concentration
  • Complete blood count
  • Assess cough effectiveness
  • Manual Assistance
  • In-exsufflator
  • Intrapulmonary Percussive Ventilation
  • Pneumococcal vaccine
  • Annual influenza vaccine
  • Optimize nutrition
  • Avoid Obesity
  • Assess for scoliosis
  • Chest x-ray
  • Assess for dysphagia
  • Swallow study
  • Electrocardiogram
  • Echocardiogram
  • Avoidance of smoke exposure
  • Steroids
  • Monitor for steroid side effects

CF Guidelines for Care

Compassion Fatigue

A 5-part webinar series for Family Leaders

  1. Understanding Compassion Fatigue and Vicarius Trauma
  2. Understanding your warning signs and developing early intervention strategies
  3. Low impact disclosure, social support at work, taming the dragon
  4. Self Awareness & Staying on Top of our Stressful/Challenging Lives
  5. Balancing Life and Work

Additional Resources