Assessment for Patients with Neuromuscular Disease
- Spirometry
- Maximal inspiratory and expiratory pressure
- Peak cough flow
- Whole body plethysmography
- Polysomnography
- Venous blood gas
- Serum bicarbonate concentration
- Complete blood count
- Assess cough effectiveness
- Manual Assistance
- In-exsufflator
- Intrapulmonary Percussive Ventilation
- Pneumococcal vaccine
- Annual influenza vaccine
- Optimize nutrition
- Avoid Obesity
- Assess for scoliosis
- Chest x-ray
- Assess for dysphagia
- Swallow study
- Electrocardiogram
- Echocardiogram
- Avoidance of smoke exposure
- Steroids
- Monitor for steroid side effects
CF Guidelines for Care
- Care for Newborns Guidelines
- CF Metabolic Syndrome
- Pulmonary Complications: Hemoptysis and Pneumothorax
- CF Airway Clearance Guidelines
- Management of Liver and Biliary Tract Disease in CF
- Bone Health and Disease in Cystic Fibrosis
- Guidelines for Management of Infants with CF
- Allergic Bronchopulmonary Aspergillosis in CF
- CF Pulmonary Exacerbation Treatment Guidelines
Compassion Fatigue
A 5-part webinar series for Family Leaders
- Understanding Compassion Fatigue and Vicarius Trauma
- Understanding your warning signs and developing early intervention strategies
- Low impact disclosure, social support at work, taming the dragon
- Self Awareness & Staying on Top of our Stressful/Challenging Lives
- Balancing Life and Work